Endocul: endometriosis and cultural diversity: improving services for minority ethnic women.

This research project is the first collaborative project between three UK Universities which has explored the ways in which minority ethnic women experience endometriosis and its treatment. It lists its objectives as:
To elicit cultural meanings of reproduction and sexuality and the potential impact on access to services using community focus group discussions.
To explore the impact of the socio-cultural context on understandings and experience of endometriosis, for women of African Caribbean, Chinese, Greek/Greek Cypriot, Indian and Pakistani ethnic origin.
To develop and pilot culturally appropriate information resources for women with endometriosis, in English, Chinese, Greek, Gujarati and Urdu.
To develop and pilot ‘good practice’ guidance in the provision of culturally competent care for providers of endometriosis services in primary and secondary care.

Patient information produced on endometriosis in several languages, both on DVD and as information leaflets. There is also an on-line website.