Exploring the potential use of patient and public involvement to strengthen Indonesian mental health care for people with psychosis: a qualitative exploration of the views of service users and carers

Article


Susanti, H., James, K., Utomo, B., Keliat, B., Lovell, K., Irmansyah, I., Rose, D., Colucci, E. and Brooks, H. 2020. Exploring the potential use of patient and public involvement to strengthen Indonesian mental health care for people with psychosis: a qualitative exploration of the views of service users and carers. Health Expectations. 23 (2), pp. 377-387. https://doi.org/10.1111/hex.13007
TypeArticle
TitleExploring the potential use of patient and public involvement to strengthen Indonesian mental health care for people with psychosis: a qualitative exploration of the views of service users and carers
AuthorsSusanti, H., James, K., Utomo, B., Keliat, B., Lovell, K., Irmansyah, I., Rose, D., Colucci, E. and Brooks, H.
Abstract

Background
Patient and public involvement (PPI) has the potential to strengthen mental health systems in Indonesia and improve care for people living with psychosis. Current evidence from other parts of the world demonstrates the need to understand the contexts in which PPI is to be enacted to ensure optimal implementation.
Objective
To understand service users’ and carers’ views on the current use and potential applicability of PPI within Indonesian mental health services.
Design
Qualitative study incorporating focus groups analysed using thematic analysis.
Setting and participants
Participants included 22 service users and 21 carers recruited from two study sites in Indonesia (Jakarta and Bogor). All participants had experience of psychosis either as a service user or carer.
Results
Despite the value attributed to PPI in relation to improving services and promoting recovery, current use of such activities in Indonesian mental health services was limited. Participants expressed a desire for greater levels of involvement and more holistic care but felt community organizations were best placed to deliver this because PPI was considered more congruent with the ethos of third‐sector organizations. Additional barriers to PPI included stigma and low levels of mental health literacy in both health services and communities.
Discussion and conclusion
Participants felt that there was potential value in the use of PPI within Indonesian mental health services with careful consideration of individual contexts. Future aspirations of involvement enactment should ensure a central design and delivery role for third‐sector organizations. Facilitators to global collaborative research in the context of the current study are also discussed.

Keywordshealth services; Indonesia; mental health; patient and public involvement; qualitative research; shared decision making; United Kingdom
PublisherWiley
JournalHealth Expectations
ISSN1369-6513
Electronic1369-7625
Publication dates
Online28 Nov 2019
Print30 Mar 2020
Publication process dates
Deposited09 Dec 2019
Accepted12 Nov 2019
Output statusPublished
Publisher's version
License
Copyright Statement

© 2019 The Authors Health Expectations published by John Wiley & Sons Ltd
This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.

Digital Object Identifier (DOI)https://doi.org/10.1111/hex.13007
Web of Science identifierWOS:000499136600001
LanguageEnglish
Permalink -

https://repository.mdx.ac.uk/item/88qv3

Download files


Publisher's version
  • 40
    total views
  • 20
    total downloads
  • 0
    views this month
  • 0
    downloads this month

Export as

Related outputs

Indonesian stakeholders' perspectives on warning signs and beliefs about suicide
Setiyawati, D., Puspakesuma, N., Jatmika, W. and Colucci, E. 2024. Indonesian stakeholders' perspectives on warning signs and beliefs about suicide. Behavioral Sciences. 14 (4). https://doi.org/10.3390/bs14040295
‘We are all working toward one goal. We want people to become well’: A visual exploration of what promotes successful collaboration between community mental health workers and healers in Ghana
Kpobi, L., Read, U., Selormey, R. and Colucci, E. 2024. ‘We are all working toward one goal. We want people to become well’: A visual exploration of what promotes successful collaboration between community mental health workers and healers in Ghana. Transcultural Psychiatry. 61 (1), pp. 30-46. https://doi.org/10.1177/13634615231197998
Mental illness stigma in Bangladesh: Findings from a cross-sectional survey
Faruk, M., Khan, A., Chowdhury, K., Jahan, S., Sarker, D., Colucci, E. and Hasan, M. 2023. Mental illness stigma in Bangladesh: Findings from a cross-sectional survey. Cambridge Prisms: Global Mental Health. 10. https://doi.org/10.1017/gmh.2023.56
‘Breaking the chains’: reflections on the making of an ethnographic documentary on human rights violations against people with mental illness in Indonesia
Colucci, E. 2023. ‘Breaking the chains’: reflections on the making of an ethnographic documentary on human rights violations against people with mental illness in Indonesia. Visual Studies. 39 (3), pp. 307-320. https://doi.org/10.1080/1472586X.2023.2274892
Indonesian first national suicide prevention strategy: key findings from the qualitative situational analysis
Onie, S., Vina, A., Taufik, K., Abraham, J., Setiyawati, D., Colucci, E., Nilam, J., Onie, S., Hunt, A., Saputra, A., Hidayati, N., Harsono, C., Bestari, D., Muhdi, N., Wolter, A., Liem, A., Rochmawati, I., Ardian, J., Prasojo, R., Heri Setiawan, Y., Heny, G., Purnawan, H., Gamayanti, I., Senosoenoto, H., Jenarut, M., Prawira, B., Trianggoro, C., Warbung, E., Novita Mudjianto, C., Ariani, A., Irmansyah, I., Mulia, M., Badudu, J., Badudu, M., Kumolohadi, R., Zein, R., Mahadi, S., Wongkaren, T., Josifovski, N. and Larsen, M. 2023. Indonesian first national suicide prevention strategy: key findings from the qualitative situational analysis. The Lancet Regional Health – Southeast Asia. 16. https://doi.org/10.1016/j.lansea.2023.100245
An Interpretative Phenomenological Analysis (IPA) of the experiential perspectives of volunteer befrienders, pertaining to causes of suicidality and prevention
Macdonald-Hart, S. and Colucci, E. 2020. An Interpretative Phenomenological Analysis (IPA) of the experiential perspectives of volunteer befrienders, pertaining to causes of suicidality and prevention. Journal of Suicide Prevention. 2 (1), pp. 15-30.
Lived experiences of mental health recovery in persons of culturally and linguistically diverse (CALD) backgrounds within the Australian context
Levy-Fenner, E., Colucci, E. and McDonough, S. 2022. Lived experiences of mental health recovery in persons of culturally and linguistically diverse (CALD) backgrounds within the Australian context. Journal of Psychosocial Rehabilitation and Mental Health. https://doi.org/10.1007/s40737-022-00319-y
Piloting of a suicide first aid gatekeeper training (online) for children and young people in conflict affected areas in Syria
Colucci, E., Jaroudy, S. and Rossmann, M. 2022. Piloting of a suicide first aid gatekeeper training (online) for children and young people in conflict affected areas in Syria. International Review of Psychiatry. 34 (6), pp. 640-648. https://doi.org/10.1080/09540261.2022.2100245
Il ruolo di sacerdoti Camilliani nella cura di persone vittime di pratiche di contenimento e/o reclusione a causa di malattia mentale nell’isola di Flores in Indonesia
Colucci, E., Prastyani, A. and Setiyawati, D. 2022. Il ruolo di sacerdoti Camilliani nella cura di persone vittime di pratiche di contenimento e/o reclusione a causa di malattia mentale nell’isola di Flores in Indonesia. Transculturale. 1 (1), pp. 79-87. https://doi.org/10.7413/tran0005
How can we mainstream mental health in research engaging the range of Sustainable Development Goals? A theory of change
Madill, A., Bhola, P., Colucci, E., Croucher, K., Evans, A. and Graber, R. 2022. How can we mainstream mental health in research engaging the range of Sustainable Development Goals? A theory of change. PLOS Global Public Health. 2 (8), pp. 1-12. https://doi.org/10.1371/journal.pgph.0000837
Youth Culturally adapted Manual Assisted Problem Solving Training (YCMAP) in Pakistani adolescent with a history of self-harm: protocol for multicentre clinical and cost-effectiveness randomised controlled trial
Husain, N., Tofique, S., Chaudhry, I., Kiran, T., Taylor, P., Williams, C., Memon, R., Aggarwal, S., Alvi, M., Ananiadou, S., Ansari, M., Aseem, S., Beck, A., Alam, S., Colucci, E., Davidson, K., Edwards, S., Emsley, R., Green, J., Gumber, A., Hawton, K., Jafri, F., Khaliq, A., Mason, T., Mcreath, A., Minhas, A., Naeem, F., Naqvi, H., Noureen, A., Panagioti, M., Patel, A., Poppleton, A., Shiri, T., Simic, M., Sultan, S., Nizami, A., Zadeh, Z., Zafar, S. and Chaudhry, N. 2022. Youth Culturally adapted Manual Assisted Problem Solving Training (YCMAP) in Pakistani adolescent with a history of self-harm: protocol for multicentre clinical and cost-effectiveness randomised controlled trial. BMJ Open. 12 (5). https://doi.org/10.1136/bmjopen-2021-056301
Suicide first aid guidelines for Indonesia: a Delphi consensus study
Setiyawati, D., Jatmika, W., Puspakesuma, N., Retnowati, S. and Colucci, E. 2022. Suicide first aid guidelines for Indonesia: a Delphi consensus study. Journal of Mental Health. 31 (3), pp. 410-431. https://doi.org/10.1080/09638237.2021.2022632
Afflictions: Steps towards a Visual Psychological Anthropology by Robert Lemelson and Annie Tucker [Book review]
Colucci, E. 2019. Afflictions: Steps towards a Visual Psychological Anthropology by Robert Lemelson and Annie Tucker [Book review]. Anthropological Quarterly. 92 (3), pp. 943-948. https://doi.org/10.1353/anq.2019.0050
Suicide first aid guidelines for people from immigrant and refugee backgrounds
Colucci, E., Jorm, A., Kelly, C. and Minas, H. 2018. Suicide first aid guidelines for people from immigrant and refugee backgrounds. Melbourne Mental Health in Multicultural Australia; Global and Cultural Mental Health Unit, Centre for Mental Health, Melbourne School of Population and Global Health, The University of Melbourne; and Mental Health First Aid Australia.
Recovering from mental illness and suicidal behaviour in a culturally diverse context: the use of digital storytelling in cross-cultural medical humanities and mental health
Colucci, E. and McDonough, S. 2019. Recovering from mental illness and suicidal behaviour in a culturally diverse context: the use of digital storytelling in cross-cultural medical humanities and mental health. in: Lo, V., Berry, C. and Liping, G. (ed.) Film and the Chinese Medical Humanities United Kingdom Routledge. pp. 205-225
Priests, a grandmother and schizophrenia
Prastyani, A., Setiyawati, D. and Colucci, E. 2020. Priests, a grandmother and schizophrenia. Inside Indonesia. 141.
Towards the development of ethics guidelines for visual psychology: a review of relevant visual research ethics guidelines
Hansen, S. and Colucci, E. 2020. Towards the development of ethics guidelines for visual psychology: a review of relevant visual research ethics guidelines. Qualitative Methods in Psychology Bulletin. Autumn (30). https://doi.org/10.53841/bpsqmip.2020.1.30.83
Civic engagement and mental health system strengthening in Indonesia: a qualitative examination of the views of health professionals and national key stakeholders
Irmansyah, I., Susanti, H., James, K., Lovell, K., Idaiani, S., Imah, S., Hargiana, G., Keliat, B., Utomo, B., Colucci, E. and Brooks, H. 2020. Civic engagement and mental health system strengthening in Indonesia: a qualitative examination of the views of health professionals and national key stakeholders. BMC Psychiatry. 20 (1), pp. 1-15. https://doi.org/10.1186/s12888-020-02575-3
Implementing civic engagement within mental health services in South East Asia: a systematic review and realist synthesis of current evidence
James, K., Brooks, H., Susanti, H., Waddingham, J., Irmansyah, I., Keliat, B., Utomo, B., Rose, D., Colucci, E. and Lovell, K. 2020. Implementing civic engagement within mental health services in South East Asia: a systematic review and realist synthesis of current evidence. International Journal of Mental Health Systems. 14 (1), pp. 1-13. https://doi.org/10.1186/s13033-020-00352-z
A cross-cultural study of attitudes toward suicide among young people in India, Italy and Australia
Colucci, E. and Lester, D. 2020. A cross-cultural study of attitudes toward suicide among young people in India, Italy and Australia. International Journal of Social Psychiatry. 66 (7), pp. 700-706. https://doi.org/10.1177/0020764020926551
Traditional healers' and biomedical practitioners' perceptions of collaborative mental healthcare in low- and middle-income countries: a systematic review
Green, B. and Colucci, E. 2020. Traditional healers' and biomedical practitioners' perceptions of collaborative mental healthcare in low- and middle-income countries: a systematic review. Transcultural Psychiatry. 57 (1), pp. 94-107. https://doi.org/10.1177/1363461519894396
Refugees, resettlement experiences and mental health: a systematic review of case studies
Bulik, K. and Colucci, E. 2019. Refugees, resettlement experiences and mental health: a systematic review of case studies. Jornal Brasileiro de Psiquiatria. 68 (2), pp. 121-132. https://doi.org/10.1590/0047-2085000000235
Evaluating the acceptability of a co-produced and co-delivered mental health public engagement festival: Mental Health Matters, Jakarta, Indonesia
Brooks, H., Irmansyah, I., Susanti, H., Utomo, B., Prawira, B., Iskandar, L., Colucci, E., Keliat, B., James, K., Bee, P., Bell, V. and Lovell, K. 2019. Evaluating the acceptability of a co-produced and co-delivered mental health public engagement festival: Mental Health Matters, Jakarta, Indonesia. Research Involvement and Engagement. 5 (1), pp. 1-10. https://doi.org/10.1186/s40900-019-0161-3
People of immigrant and refugee background sharing experiences of mental health recovery: reflections and recommendations on using digital storytelling
McDonough, S. and Colucci, E. 2019. People of immigrant and refugee background sharing experiences of mental health recovery: reflections and recommendations on using digital storytelling. Visual Communication. https://doi.org/10.1177/1470357218820651
Spirituality and wellbeing in the context of a study on suicide prevention in North India
Wagani, R. and Colucci, E. 2018. Spirituality and wellbeing in the context of a study on suicide prevention in North India. Religions. 9 (6). https://doi.org/10.3390/rel9060183
Suicide first aid guidelines for assisting persons from immigrant or refugee background: a Delphi study
Colucci, E., Jorm, A., Kelly, C. and Minas, H. 2018. Suicide first aid guidelines for assisting persons from immigrant or refugee background: a Delphi study. Advances in Mental Health. 16 (2), pp. 105-116. https://doi.org/10.1080/18387357.2018.1469383
Reviews: Applied visual anthropology: reflections from the RAI film festival 2017
Colucci, E. 2018. Reviews: Applied visual anthropology: reflections from the RAI film festival 2017. Anthropology in Action. 25 (1), pp. 49-55. https://doi.org/10.3167/aia.2018.250106
Post-traumatic stress disorders, depression, and anxiety in unaccompanied refugee minors exposed to war-related trauma: a systematic review
El Baba, R. and Colucci, E. 2018. Post-traumatic stress disorders, depression, and anxiety in unaccompanied refugee minors exposed to war-related trauma: a systematic review. International Journal of Culture and Mental Health. 11 (2), pp. 194-207. https://doi.org/10.1080/17542863.2017.1355929
Exploring the potential of civic engagement to strengthen mental health systems in Indonesia (IGNITE): a study protocol
Brooks, H., James, K., Irmansyah, I., Keliat, B., Utomo, B., Rose, D., Colucci, E. and Lovell, K. 2018. Exploring the potential of civic engagement to strengthen mental health systems in Indonesia (IGNITE): a study protocol. International Journal of Mental Health Systems. 12 (1). https://doi.org/10.1186/s13033-018-0227-x
Cross-cultural generalizability of suicide first aid actions: an analysis of agreement across expert consensus studies from a range of countries and cultures
Jorm, A., Ross, A. and Colucci, E. 2018. Cross-cultural generalizability of suicide first aid actions: an analysis of agreement across expert consensus studies from a range of countries and cultures. BMC Psychiatry. 18. https://doi.org/10.1186/s12888-018-1636-8
Forgiveness in PTSD after man-made traumatic events: a systematic review
Cerci, D. and Colucci, E. 2018. Forgiveness in PTSD after man-made traumatic events: a systematic review. Traumatology. 24 (1), pp. 47-54. https://doi.org/10.1037/trm0000130
Breaking the chains: ethnographic film-making in mental health
Colucci, E. 2016. Breaking the chains: ethnographic film-making in mental health. The Lancet Psychiatry. 3 (6), pp. 509-510. https://doi.org/10.1016/S2215-0366(16)30034-7
Should compulsory admission to hospital be part of suicide prevention strategies?
Wang, D. and Colucci, E. 2017. Should compulsory admission to hospital be part of suicide prevention strategies? BJPsych Bulletin. 41 (3), pp. 169-171. https://doi.org/10.1192/pb.bp.116.055699
Improving access to and engagement with mental health services among young people from refugee backgrounds: service user and provider perspectives
Colucci, E., Valibhoy, M., Szwarc, J., Kaplan, I. and Minas, H. 2017. Improving access to and engagement with mental health services among young people from refugee backgrounds: service user and provider perspectives. International Journal of Culture and Mental Health. 10 (2), pp. 185-196. https://doi.org/10.1080/17542863.2017.1279674
A suicide research agenda for people from immigrant and refugee backgrounds
Colucci, E., Too, L. and Minas, H. 2017. A suicide research agenda for people from immigrant and refugee backgrounds. Death Studies. 41 (8), pp. 502-511. https://doi.org/10.1080/07481187.2017.1332912
Suicide first aid guidelines for Sri Lanka: a Delphi consensus study
De Silva, S., Colucci, E., Mendis, J., Kelly, C., Jorm, A. and Minas, H. 2016. Suicide first aid guidelines for Sri Lanka: a Delphi consensus study. International Journal of Mental Health Systems. 10. https://doi.org/10.1186/s13033-016-0085-3
Exploring domestic violence and social distress in Australian-Indian migrants through community theater
O'Connor, M. and Colucci, E. 2016. Exploring domestic violence and social distress in Australian-Indian migrants through community theater. Transcultural Psychiatry. 53 (1), pp. 24-44. https://doi.org/10.1177/1363461515599327
In or out? Barriers and facilitators to refugee-background young people accessing mental health services
Colucci, E., Minas, H., Szwarc, J., Guerra, C. and Paxton, G. 2015. In or out? Barriers and facilitators to refugee-background young people accessing mental health services. Transcultural Psychiatry. 52 (6), pp. 766-790. https://doi.org/10.1177/1363461515571624
Improving cultural responsiveness in mental health services: development of a consensus around the role of cultural portfolio holders
Colucci, E., Chopra, P., McDonough, S., Kouzma, N. and Minas, H. 2014. Improving cultural responsiveness in mental health services: development of a consensus around the role of cultural portfolio holders. International Journal of Culture and Mental Health. 7 (3), pp. 339-355. https://doi.org/10.1080/17542863.2013.812130