Prescribing issues experienced by people living with phenylketonuria in the UK
Article
Ford, S., O'Driscoll, M. and MacDonald, A. 2019. Prescribing issues experienced by people living with phenylketonuria in the UK. Molecular Genetics and Metabolism Reports. 21, pp. 1-7. https://doi.org/10.1016/j.ymgmr.2019.100527
Type | Article |
---|---|
Title | Prescribing issues experienced by people living with phenylketonuria in the UK |
Authors | Ford, S., O'Driscoll, M. and MacDonald, A. |
Abstract | Background: Foods for Special Medical purposes (Phe-free protein substitutes [PS] and low protein foods [LPFs]) are central to successful dietary management of patients with phenylketonuria (PKU). In the UK, PS and LPFs are prescribed by primary care general practitioners (GPs) and dispensed by high street pharmacists or via home delivery companies. As patients and carers commonly reported access issues with PS and LPFs through the National Society for PKU (NSPKU) helpline, the NSPKU collected more information about the extent of prescriptions issues via a questionnaire. |
Keywords | Phenylketonuria; Phenylalanine; Diet; Low protein special foods; Protein substitutes |
Publisher | Elsevier |
Journal | Molecular Genetics and Metabolism Reports |
ISSN | 2214-4269 |
Electronic | 2214-4269 |
Publication dates | |
Online | 25 Oct 2019 |
01 Dec 2019 | |
Publication process dates | |
Deposited | 28 Oct 2019 |
Accepted | 27 Sep 2019 |
Submitted | 31 Jul 2019 |
Output status | Published |
Publisher's version | License File Access Level Open |
Accepted author manuscript | License File Access Level Restricted |
Copyright Statement | © 2019. This manuscript version is made available under the CC-BY-NC-ND 4.0 license http://creativecommons.org/licenses/by-nc-nd/4.0/ |
Digital Object Identifier (DOI) | https://doi.org/10.1016/j.ymgmr.2019.100527 |
Web of Science identifier | WOS:000500718300018 |
Language | English |
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