Biopsychosocial implications of living with multiple sclerosis: a qualitative study using interpretative phenomenological analysis

Article


Kassie, S., Alia, J. and Hyland, L. 2021. Biopsychosocial implications of living with multiple sclerosis: a qualitative study using interpretative phenomenological analysis. BMJ Open. 11 (8), pp. 1-10. https://doi.org/10.1136/bmjopen-2021-049041
TypeArticle
TitleBiopsychosocial implications of living with multiple sclerosis: a qualitative study using interpretative phenomenological analysis
AuthorsKassie, S., Alia, J. and Hyland, L.
Abstract

Background: Multiple sclerosis (MS) is estimated to affect 2.8 million people worldwide, with increasing prevalence in all world regions (Walton et al). While there is no cure for MS, medication and lifestyle modifications can slow disease progression and enhance patients’ quality of life. The biopsychosocial model of health recognises important interactions among biological, psychological and social factors in illness, including those relating to illness management, which contribute to the experience of those diagnosed with MS. Objective: This qualitative, idiographic study aimed to explore the lived experiences of patients in the United Arab Emirates (UAE) diagnosed with S. Methods: Semistructured interviews were conducted with a purposive sample of eight patients with MS ranging in age from 25 to 56 years. All participants were residing in the UAE at the time of data collection. Interpretative phenomenological analysis was used to analyse the data. Results: Three superordinate themes were identified from patients’ candid accounts of their lives with MS, highlighting issues of illness management, acceptance and gratitude, and adaptive coping. These themes broadly illustrate biological, psychological and social aspects of patients’ MS experiences. Conclusion: The study emphasised the importance of adopting the biopsychosocial model to treat and manage MS. Additionally, it highlights the need for routine assessment and early, multidimensional approach with multidisciplinary team efforts to improve patients’ quality of life.

Keywordsmultiple sclerosis; qualitative research; health services administration & management; neurology; psychiatry
PublisherBMJ Publishing Group Ltd
JournalBMJ Open
ISSN2044-6055
Electronic2044-6055
Publication dates
Online16 Aug 2021
Print17 Aug 2021
Publication process dates
Deposited20 Aug 2021
Accepted08 Aug 2021
Output statusPublished
Publisher's version
License
Copyright Statement

© Author(s) (or their employer(s)) 2021. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. http://creativecommons.org/licenses/by-nc/4.0/
This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/.

Digital Object Identifier (DOI)https://doi.org/10.1136/bmjopen-2021-049041
Scopus EID2-s2.0-85113409422
Web of Science identifierWOS:000686260400026
LanguageEnglish
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