Voluntary DNA-based information exchange and contact services following donor conception: an analysis of service users’ needs

Article


Crawshaw, M., Frith, L., van den Akker, O. and Blyth, E. 2016. Voluntary DNA-based information exchange and contact services following donor conception: an analysis of service users’ needs. New Genetics and Society. 35 (4), pp. 372 -392. https://doi.org/10.1080/14636778.2016.1253462
TypeArticle
TitleVoluntary DNA-based information exchange and contact services following donor conception: an analysis of service users’ needs
AuthorsCrawshaw, M., Frith, L., van den Akker, O. and Blyth, E.
Abstract

Medical science has enabled the creation of families through the use of donor conception but some lifelong policy and practice implications are only recently being recognized. Research and practice have shown that donor conception can, for some, carry substantial long-term consequences. In this paper we present findings from a questionnaire-based study that sought to shed light on donor-conceived adults’ and gamete donors’ views on service and support needs when searching for genetic relatives with the aid of DNA testing. The findings demonstrate the complexity and sensitivity of providing services in this newly emerging area of need. Such provision requires collaboration between very different disciplines and agencies (scientific and psychosocial), introduces the potential for blurring of lines of accountability and responsibility, and highlights the challenges of identifying appropriate funding streams. In addition, the findings demonstrate the opportunities and limitations afforded by the use of DNA in identifying unknown genetic relatives.

Research GroupApplied Health Psychology group
PublisherTaylor & Francis (Routledge)
JournalNew Genetics and Society
ISSN1463-6778
Electronic1469-9915
Publication dates
Print30 Oct 2016
Online10 Nov 2016
Publication process dates
Deposited19 Jan 2017
Submitted14 Jun 2016
Accepted10 Oct 2016
Output statusPublished
Accepted author manuscript
Copyright Statement

This is an Accepted Manuscript of an article published by Taylor & Francis in New Genetics and Society on 10/11/2016, available online: http://www.tandfonline.com/10.1080/14636778.2016.1253462

Digital Object Identifier (DOI)https://doi.org/10.1080/14636778.2016.1253462
LanguageEnglish
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